【Journey 04】Cancer hospital diagnosis – The reality of only life-prolonging treatment

【闘病記04】がん専門病院の診断 - 延命治療のみの現実

このブログでは、すい臓がん完治するまでの、知識と経験を共有していきます

Hello, I’m Chico.

In the previous article, I talked about my search for a hospital to ask for cancer treatment and how I finally made it to my first appointment at the hospital of my choice.

But after that

チコ

A hospital specializing in cancer would surely help me!

Such a faint expectation of mine failed, and I faced a harsh reality.

This time, I will talk from here.

もくじ

The only treatment left was chemotherapy to prolong life

病院
専門病院 K 先生

Our diagnosis is the same as the result of the university hospital.

Dr. K, later attending physician, Hepatobiliary and Pancreatic Physician, said quietly.

The meaning of “preoperative adjuvant therapy, not such a sweet thing”

医師

Same diagnosis as university hospital…

チコ

・・・

So, this means that surgery cannot be performed immediately because the tumor is engulfing blood vessels….

Your only treatment is anticancer drugs

抗がん剤治療
専門病院 K 先生

Your only treatment is anticancer drugs.

Well, the regimen of anticancer drugs is generally the same regardless of which hospital you receive them at.

So, if it’s easier for you to go to the university hospital, that’s fine too.

チコ

What?! What is this doctor talking about?
I’m here because I want to be cured with even a little proper treatment.

チコ

No, I would like to proceed with treatment here.

専門病院 K 先生

I understand.

We’ll need to do another round of tests here though…
Okay, let’s do anti-cancer treatment at the same time.

チコ

Thank you

チコ

Oh, you mean, the anticancer drug is for “preoperative adjuvant chemotherapy” treatment, right?

It is not for preoperative adjuvant chemotherapy

先生

Because I learned about the treatment called “preoperative adjuvant chemotherapy” through my prior study, I nodded proudly.

Preoperative adjuvant chemotherapy is a treatment method in which anticancer drugs are first administered, followed by surgery.

術前補助化学療法とは、最初にまず抗がん剤治療を行い、その後に手術を行うという治療法

出典:日本消化器病学会

But soon, the doctor denied “preoperative adjuvant chemotherapy” as though to interrupt me.

専門病院 K 先生

No no, it’s not just like that.

No no, it’s not like such a sweet thing that is preoperative adjuvant therapy.

・・・・・

チコ

What? What do you mean?

You can not have surgery

判断

・・・

専門病院 K 先生

You can not have surgery.

チコ

・・

Looking at the CT images, Dr. K, who has a cool atmosphere, continued calmly.

専門病院 K 先生

We may make a more severe diagnosis than other university hospitals.

After this, the doctor explained why surgery was not possible.

専門病院 K 先生

The tumor is about 2.5 cm in size. But unfortunately, it involves a large amount of important blood vessels.

He then pointed to the CT image

画像検査の結果を指さす先生
専門病院 K 先生

We can see swollen lymph nodes, and there is the possibility of metastasis.

By the way, at the university hospital where I was first diagnosed, the size of the tumor was diagnosed as 2.0 cm, so by simple calculation, it grew 0.5 cm in about 10 days.

Hope and Disappointment

A hope against hope that there is a perfect treatment somewhere

期待のイメージ

I was hoping against hope that I could have a perfect treatment.

This is because I took my cancer as a borderline pancreatic cancer (it means it may or may not be able to remove by surgery),

when I was first told at the university hospital that the surgery might be difficult.

治療のアルゴリズム
出典:膵臓診療ガイドライン|日本膵臓学会
チコ

I know, yes he said that the surgery might be difficult. But he didn’t say it was impossible.

チコ

I thought the surgery was difficult because the hospital was a university hospital and a general hospital.

チコ

I thought that a specialized hospital should have more advanced treatment and surgery.

Hospitals that are thoroughly researching cancer treatment will surely help me… I believed that.

But I was wrong.

Because they are such a hospital specializing in cancer, they have made more severe diagnoses.

At a loss for words facing with the reality

直面した現実

You can not have surgery.

チコ

・・

Surgery is not possible. Therefore, anticancer drugs are used.

At this time, I was confused and did not understand what the doctor meant by these words.

チコ

Really? So how long will the anticancer drug treatment last?

専門病院 K 先生

Well…

The doctor choked on his words for a moment, and said.

It’ll last a lifetime.

チコ

a lifetime…

・・・・・・・・・

What lifelong anticancer drugs mean

Surgery is the most “curative” treatment

手術が最も「根治的な(治る可能性のある)」治療法

出典:膵がん|国立がん研究センター

Currently, surgery is the most likely curable treatment for pancreatic cancer in Japan.

Cancer drug will last a lifetime

And the “lifelong anticancer drug” that I was told is

Yes, cancer drug treatment will last forever.

チコ

Well, then, it means life-prolonging treatment…?

チコ

・・・・・

We often say “lost my words” though, I literally lost my words.

I can’t find the words to say next.

チコ

・・・・・

Prolonging life

Yet somehow, I searched for the next word

And then, desperately said

チコ

Well.. Dr. K, then, can you extend my life by 30 years?

・・・・・

専門病院 K 先生

・・・a-ha-ha・・

Well Yeah, let’s do our best! not 30 years, but 40 or 50 years!

Still moving forward

前を見て生きる
専門病院 K 先生

…Just now, there is a clinical trial that you are also applicable to. would you like to try it?

Thus, I started treatment with the anticancer drug Folfirinox and the investigational nivolumab.

Everyone was so nice

After I left the examination room, a nurse came running to me and called out to me.

看護師さん

Chico-san, please wait!

チコ

Uh, what’s wrong?

看護師さん

Are you okay?

You were listening to the doctor’s talk without upset and calmly, are you okay with that?

チコ

What?

看護師さん

Can you go home alone?!

It seems that the nurse, on the contrary, became worried about me because I was too calm, and called out to me.

Everyone is so kind.

Lessons learned during this period – the importance of taking a bird’s-eye view

教訓

From the hospital search I wrote in the previous article “【Journey 03】Find a hospital for treatment – act quickly and without regret

through the diagnosis at the hospital I chose, I realized the importance of taking a bird’s-eye view.

Awareness until reaching the desired hospital for treatment

In the diagnosis of the first university hospital,

Surgery is difficult, but maybe? It was a delicate state.

In such a time-sensitive situation, there was no time to cry.

◇  ◇  ◇ 

In order to successfully connect to the next

I needed to look at the whole picture, and know where I was now and how to move on next.

The essence of everything

In my work, I have been asked to take a bird’s-eye view of the situation, consider the risks, and then look for the best choice.

◇  ◇  ◇ 

Taking a bird’s-eye view, seeing the big picture

I thought this was necessary because of my profession as a project manager.

But it was not.

◇  ◇  ◇ 

Even in situations that “connect lives” such as choosing a hospital, it is important to have a bird’s-eye view.

It was the fundamental essence of capturing things from a bird’s-eye view.

With bird’s eye, bug’s eye, fish’s eye

In business, it is often said that it is important to have bird’s eyes, insect eyes, and fish eyes.

  • Bird’s eye: get the big picture
  • Bug’s eye: look for details
  • Fish eyes: Reading the Flow

I thought that these three perspectives are important for us to live.

Conclusion

Diagnosed with cancer, surprised by the low survival rate of pancreatic cancer, searched for the best hospital for me

Finally, I knocked on the door of the hospital, hoping that they would give me excellent treatment.

However, the word that was waiting there was “life-prolonging treatment”.

I will continue in the following article.

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